Pregnancy & Postpartum Associated
Cancers Project

Led by So Brave, the Pregnancy and Postpartum Associated Cancers (PAC) Project is a national initiative working to improve health experiences and outcomes for pregnancy and postpartum associated cancers.

The project brings together patients, lived experience advocates, clinicians, researchers, policymakers, and community organisations to better understand the experiences and needs of people affected by PAC and identify opportunities for meaningful improvements across the care continuum. 

As a cross-cancer initiative, the PAC Project considers the diverse experiences of people diagnosed with a range of cancers during pregnancy and the postpartum period, including breast, ovarian, bowel, lymphoma, leukaemia, cervical, melanoma, and rare cancers.

The project is funded by the Australian Government through the Cancer Patient Support Program (CPSP), and So Brave gratefully acknowledges this support.

What is Pregnancy & Postpartum
Associated Cancer?

Pregnancy and Postpartum Associated Cancers (PAC) in this project are cancers diagnosed during pregnancy or within the first two years following birth. This period represents a unique stage of life in which cancer diagnosis, treatment, recovery, work and family life often intersect. 
Cancer diagnosed during pregnancy or the postpartum period can present unique challenges. Symptoms may overlap with the physical changes associated with pregnancy and early parenthood, diagnosis may be delayed, and treatment decisions require careful consideration of parent and family needs.
Improving understanding of PAC is an important step towards earlier diagnosis, more coordinated care, better support, and improved health experiences and outcomes for patients and families.

Collaborators & Partners

To date we have engaged approximately 300 stakeholders to inform development of the National Training Toolkit, formed partnerships with health sector peak bodies and national and international experts to strengthen diagnosis, care, and data frameworks. We are prioritising ongoing collaboration with lived-experience advocates Indigenous and Culturally and Linguistically Diverse communities to deliver a purposeful PAC patient portal.
So Brave gratefully acknowledges the members of the PAC Project Clinical Advisory Board and Patient Advisory Group for their expertise, leadership, lived experience, and commitment to improving health experiences and outcomes for women across the country. 
Their invaluable contributions help ensure the project is informed by clinical best practice, emerging evidence, and the diverse experiences and needs of patients, families, and communities.

How We're Driving Change

The PAC Project is developing a first-of-its-kind PAC National Training Toolkit to improve awareness, diagnosis, care, and support for pregnancy and postpartum associated cancers. The Toolkit will include clinical and patient portals with educational e-learning modules, webinars, patient stories, multidisciplinary learning materials, and practical tools for navgating pregancy and postpartum associated cancers. The portals are being developed in collaboration with patients, clinicians, researchers, and partners to support improvements health experiences and outcomes nationwide.             

The National Toolkit will include:

Health Professional Education Portal

Build clinician capability, capacity and confidence in identifying and managing pregnancy and postpartum associated cancers.

  • Self-paced modules and microlearning courses
  • Webinars and multidisciplinary learning events
  • Clinical resources, guidelines, and best-practice tools
  • Lived experience insights

PAC Patient Portal

Co-desiging meaningful, practical and culturally relevant information and resources for patients, partners and families.

  • Trusted information & resources
  • Self-advovacy tools and checklists
  • Peer support & connection 
  • Emotional wellbeing support resources

 

Explore the PAC Project through the pathways below, designed for health professionals and researchers, and patients, partners, and families. Access available information and opportunities to help shape the future of PAC care, support, and research. As the project continues to evolve, additional resources, information, and opportunities for involvement will be added over time. 

Click on the buttons below to learn more and get involved.

Interim Report

So Brave’s pregnancy and postpartum interim project report captures the experiences, challenges, and priorities identified so far through consultation with patients, clinicians, researchers, and sector leaders. We look forward to reporting regular project updates and feedback loops to all sector and community collaborators. View the interim report via the button below.